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Living with Ehlers Danlos Syndrome
"You can't always decide what happens to you, but you can decide how you react."
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About Me
Ehlers Danlos Syndrome
Dysautonomia
Gastroparesis
Chiari and CCI
CRPS
Hip Dysplasia
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Diagnoses
Developmental Dysplasia of the Hip- 2009
Ehlers Danlos Syndrome (hypermobile)- 2010
Mitral Valve Prolapse- 2010
Neurocardiogenic Syncope-2010
Complex Regional Pain Syndrome- 2011
Chiari Malformation (8.5mm herniation)- 2011
Craniocervical Instability (C1C2)-2011
Benign Paroxysmal Positional Vertigo- 2013
Postural Orthostatic Tachycardia Syndrome- 2014
Miserable Malalignment Syndrome- 2014
Hashimoto's- 2016
Graves'- 2017
Mast Cell Activation Disorder- 2017
Gastroparesis and delayed intestinal dysmotility- 2017
Autoimmune Neutropenia- 2017
Fun Facts
I was a high-level competitive gymnast for 12 years -- I once traveled to Cancun, Mexico for a competition!
My favorite event was the balance beam!
I am a 2x USA National TOPs Team Member!
Boston is my favorite place in the world
I have two Miniature Australian Shepherds, Mick and Roo
My favorite animal is a dolphin
The Boston Bruins are my FAVORITE sports team--I am a Boston sports fan! Go B's, Pats, C's and Sox!
I am a Registered Nurse
Instagram
Follow me @medicalunicornmurph, @jmurphx11, and @jilliebeanzgifts
Email Me
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Popular Posts
I AM MOVING
My blog is moving to www.justsparklejlm.com ! New location, new name, new look...more content! I hope to see you over there...
All About Feeding Tubes
We have finally reached the point where I need a feeding tube. I have been putting this day off for a very long time (nearly 2 years) despit...
Gastroparesis Awareness Month: Smash GP
August is Gastroparesis Awareness Month. To understand gastroparesis, you need to have a general understanding of how the digestive system...
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