Last night we went to dinner for my grandpa's birthday. I had to leave early because I couldn't sit in the chair. I couldn't even enjoy my meal because I was focusing on trying to find a position that didn't cause so much pain!
It's frustrating!
Bummer!
My brother had a soccer scrimmage this morning! Normally I would go but today my hips hurt so badly that I didn't. I go to ALL of my brothers games! It's a bummer that simple activities are hard for me!
Last night we went to dinner for my grandpa's birthday. I had to leave early because I couldn't sit in the chair. I couldn't even enjoy my meal because I was focusing on trying to find a position that didn't cause so much pain!
It's frustrating!
Last night we went to dinner for my grandpa's birthday. I had to leave early because I couldn't sit in the chair. I couldn't even enjoy my meal because I was focusing on trying to find a position that didn't cause so much pain!
It's frustrating!
My name is Jill and I am 29 years old. I am a former competitive gymnast and I have Ehlers Danlos Syndrome (hEDS), Chiari Malformation- Type 1 (8.5mm herniation), craniocervical instability, Neurocardiogenic Syncope and POTS (forms of Dysautonomia and secondary conditions to EDS), slight/minor Mitral Valve Prolapse, bilateral acetabular hip dysplasia (corrected in a procedure called Periacetabular Osteotomy--PAO), gastroparesis and delayed intestinal motility, Hashimoto's, Graves', Autoimmune Neutropenia, and Complex Regional Pain Syndrome (CRPS).
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