The Iron thumbs are back!

Today was my first day back to PT. It was nice to see Edna and Cam! While I missed them, I can't say I missed PT or Cam's thumbs. Today's session was the evaluation so I didn't do very much. Cam focused on trying to get my quad to fire--it didn't--and some gentle (according to him) range of motion. My ankle still doesn't flex enough to put my heel down flat in the boot. This makes weight-bearing very painful and pretty much impossible right now. Once I get that flexion back we will work slowly on weight-bearing.

My knee is still very swollen. Cam worked on it to try to move the fluid around. I swear his thumbs are made of iron. They may even be magnetic because his thumb found its way to my screws several times. We did some bending and flexion of the knee but the ROM is lacking. Cam and I both know that my joints don't tolerate intense manual therapy. We always take a very slow approach to prevent as many set backs as possible--although that doesn't mean they don't happen.

It seems as if my right leg is in the beginning stages of CRPS. Thankfully I am already on medication for my nerves and have already started desensitization to keep it from progressing.

My hip still hurts but it is likely because I use my hip to move my leg forward. This should improve when I get more function out of the knee and ankle.

This is going to be intense and painful. I can't say that I am looking forward to the pain, but I know that this is all necessary and important.

My head is getting worse despite the treatments. I have a treatment scheduled for next week. Hopefully the headaches start to improve but I will talk to the doctor about the likelihood of things starting to improve despite having 2 treatments that have left me in more pain. I also have an appointment in April with a Chiari specialist who also understands Ehlers Danlos Syndrome and the complicated contributions of EDS to Chiari.

I will be seeing a new genetic specialist at Children's in April as she will be running the EDS program. I will also see the surgeons for post-op appointments and a shoulder consult.

It would be great if the semester were over because school is nearly impossible with my head and lack of mobility. I do, however, really like my classes and professors.