Here is a video someone made to explain what Chiari Malformation is and to raise awareness.
Chiari Malformation Awareness Month
September is Chiari Malformation Awareness month. While I have decided to forgo the decompression surgery and cervical fusion, I still have headaches everyday and a variety of other symptoms. Some days are better than others.
Here is a video someone made to explain what Chiari Malformation is and to raise awareness.
Here is a video someone made to explain what Chiari Malformation is and to raise awareness.
My name is Jill and I am 29 years old. I am a former competitive gymnast and I have Ehlers Danlos Syndrome (hEDS), Chiari Malformation- Type 1 (8.5mm herniation), craniocervical instability, Neurocardiogenic Syncope and POTS (forms of Dysautonomia and secondary conditions to EDS), slight/minor Mitral Valve Prolapse, bilateral acetabular hip dysplasia (corrected in a procedure called Periacetabular Osteotomy--PAO), gastroparesis and delayed intestinal motility, Hashimoto's, Graves', Autoimmune Neutropenia, and Complex Regional Pain Syndrome (CRPS).
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