Appointment
I saw Dr. Shiple today. Everything looks the same (which is about as good as the news can possibly be). One of the incisions on my left hip, from the arthroscopic surgery, had fluid in it and I had to have it drained! In the last hour more fluid has accumulated inside. I also have a sac of fluid in the joint that hasn't gone away yet! Dr. Shiple said I might have to try and have it drained again at some point! 28 days until surgery!
My name is Jill and I am 29 years old. I am a former competitive gymnast and I have Ehlers Danlos Syndrome (hEDS), Chiari Malformation- Type 1 (8.5mm herniation), craniocervical instability, Neurocardiogenic Syncope and POTS (forms of Dysautonomia and secondary conditions to EDS), slight/minor Mitral Valve Prolapse, bilateral acetabular hip dysplasia (corrected in a procedure called Periacetabular Osteotomy--PAO), gastroparesis and delayed intestinal motility, Hashimoto's, Graves', Autoimmune Neutropenia, and Complex Regional Pain Syndrome (CRPS).
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