Let's hope my left hip is nice and decides to feel better soon or this could get interesting!
Pre-Op
I received my letter from Children's Hospital of Boston today containing my Pre-Op appointment, Admitting appointment, and 6 week Post-Op appointment. It's becoming more 'real' now! Only 2 weeks until we leave for Boston and 3 weeks until surgery. Let the journey begin!
Let's hope my left hip is nice and decides to feel better soon or this could get interesting!
Let's hope my left hip is nice and decides to feel better soon or this could get interesting!
My name is Jill and I am 29 years old. I am a former competitive gymnast and I have Ehlers Danlos Syndrome (hEDS), Chiari Malformation- Type 1 (8.5mm herniation), craniocervical instability, Neurocardiogenic Syncope and POTS (forms of Dysautonomia and secondary conditions to EDS), slight/minor Mitral Valve Prolapse, bilateral acetabular hip dysplasia (corrected in a procedure called Periacetabular Osteotomy--PAO), gastroparesis and delayed intestinal motility, Hashimoto's, Graves', Autoimmune Neutropenia, and Complex Regional Pain Syndrome (CRPS).
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