Shoulder Surgeon
We heard back from Boston today. Unfortunately I will not be able to see the shoulder surgeon during my appointment with my hip surgeon on December 16th. Instead, I will see the shoulder surgeon on the 17th. Hopefully my hip surgeon will be able to stop in during that appointment. At least we are able to fit everything in during our trip.
My name is Jill and I am 29 years old. I am a former competitive gymnast and I have Ehlers Danlos Syndrome (hEDS), Chiari Malformation- Type 1 (8.5mm herniation), craniocervical instability, Neurocardiogenic Syncope and POTS (forms of Dysautonomia and secondary conditions to EDS), slight/minor Mitral Valve Prolapse, bilateral acetabular hip dysplasia (corrected in a procedure called Periacetabular Osteotomy--PAO), gastroparesis and delayed intestinal motility, Hashimoto's, Graves', Autoimmune Neutropenia, and Complex Regional Pain Syndrome (CRPS).
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