A Special Guest
YAY! 2 days until my Hip Chick friend comes to visit! She had a PAO at Children's Hospital of Boston the day before my knee reconstruction. We were 2 rooms apart but couldn't meet because..well we couldn't move! Her mom came to visit me and my mom visited her..so now it's time for us to meet : )
My name is Jill and I am 29 years old. I am a former competitive gymnast and I have Ehlers Danlos Syndrome (hEDS), Chiari Malformation- Type 1 (8.5mm herniation), craniocervical instability, Neurocardiogenic Syncope and POTS (forms of Dysautonomia and secondary conditions to EDS), slight/minor Mitral Valve Prolapse, bilateral acetabular hip dysplasia (corrected in a procedure called Periacetabular Osteotomy--PAO), gastroparesis and delayed intestinal motility, Hashimoto's, Graves', Autoimmune Neutropenia, and Complex Regional Pain Syndrome (CRPS).
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