Save the Date...again!

My shoulder surgery is scheduled for May 6th.  I am relieved to finally have both of my surgeries set. Now I can start preparing. I am still waiting on the pre-op dates--that will determine when we leave for Boston.

Like last time, I have to donate 2 units of blood for my RPAO. One donation can be done at an offsite location-American Red Cross. The second unit must be done at the Blood Donor Center at Children's. I was able to schedule my donation at the BDC for March 17th (my favorite minor holiday..sad face). Once I hear back from my PAO surgeon's surgical coordinator I will be able to set up my blood donation with the American Red Cross. 

Today is a horrible flare day with my CRPS. Even having my pants touch my leg is extremely painful. I have been experiencing more swelling and discoloration lately and the burning has been excruciating at times. I am hoping Neurontin starts to provide some relief in the next week or so. I also heard back from my primary surgeon regarding seeing a specialist at Children's. He is trying to get me in to see one of the leading specialists in pediatric RSD/CRPS. Once again, I am blessed to have found such a wonderful team at Children's. It's always reassuring to know that you are receiving the BEST care..especially with my complicated case.