http://www.ednf.org/images/stories/leaflets/soyouthinkyoumighthaveeds.pdf
Please take the time to say a prayer for my friend Madeline. She has EDS and underwent reconstructive knee surgery today!
Think You Have EDS?
Here is an article that I found very interesting when I was going through the initial stages of being diagnosed with EDS. Please keep in mind that no 2 cases are the same. If you believe you could have EDS please consult a genetic specialist for further clinical evaluation.
http://www.ednf.org/images/stories/leaflets/soyouthinkyoumighthaveeds.pdf
Please take the time to say a prayer for my friend Madeline. She has EDS and underwent reconstructive knee surgery today!
http://www.ednf.org/images/stories/leaflets/soyouthinkyoumighthaveeds.pdf
Please take the time to say a prayer for my friend Madeline. She has EDS and underwent reconstructive knee surgery today!
My name is Jill and I am 29 years old. I am a former competitive gymnast and I have Ehlers Danlos Syndrome (hEDS), Chiari Malformation- Type 1 (8.5mm herniation), craniocervical instability, Neurocardiogenic Syncope and POTS (forms of Dysautonomia and secondary conditions to EDS), slight/minor Mitral Valve Prolapse, bilateral acetabular hip dysplasia (corrected in a procedure called Periacetabular Osteotomy--PAO), gastroparesis and delayed intestinal motility, Hashimoto's, Graves', Autoimmune Neutropenia, and Complex Regional Pain Syndrome (CRPS).
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