As for my back, there is no medication I can take because I am taking Neurontin (for RSD). A muscle relaxant (Valium) and Neurontin could cause respiratory depression, which is already a problem for me. I can't use an electric heating pad because of my burn, so Dr. Brown recommended I use the thermacare wrap--it won't burn me! I have one on right now and although it's not as hot as a heating pad it feels great!
Dysautonomia and neurocardiogenic syncope were confirmed today. They are both related..and connected to EDS as well. I was also shocked to learn that my "low firing rates" in my muscles (determined by the EMG) is also consistent with neurocardiogenic syncope. There is not much I can do about either "disorder." It is important to be aware of my triggers and stay on top of them to prevent any syncopal episodes. I need to maintain a high salt diet and drink plenty of fluids.
The return of my seasonal allergies has also made my asthma worse. I was prescribed to Symbicort to help with my asthma. Unfortunately I cannot take most allergy medications because of the interaction with Neurontin. The reaction could also cause respiratory depression. Instead I was prescribed eye drops and a nasal spray that travels into the tear ducts. My eyes are the worst..at least right now!
Last night I watched The Lion King with Marena! What a classic.We also listened to Goodnight Moon (3 times) and both fell asleep. I felt so much better this morning after having slept for 8 hours. I need to get my sleeping patterns back to normal before my shoulder surgery.
I have therapy tomorrow and have a lot to tell Cam! Marena and I are going to get pedicures as well. I think we deserve them.
Marena bought me an adorable dog from Mary Meyer! I named him McGee (from NCIS). She has a monkey named Nanerz. She also bought me a pink picture frame with BFF engraved on it. Now I need to find the perfect picture of us! I got a Victoria's Secret fragrance spray! It smells amazing! Thanks Marena..you're the best <3
Best Friends
Hakuna Matata...it means no worries (for the rest of your days)!
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