To download powerpoints and .pdf files-- click here
EDS National Conference Presentations
For those interested, the EDS National Foundation posted many of the presentations from their annual conference (held in Baltimore, MD).
To download powerpoints and .pdf files-- click here
To download powerpoints and .pdf files-- click here
My name is Jill and I am 29 years old. I am a former competitive gymnast and I have Ehlers Danlos Syndrome (hEDS), Chiari Malformation- Type 1 (8.5mm herniation), craniocervical instability, Neurocardiogenic Syncope and POTS (forms of Dysautonomia and secondary conditions to EDS), slight/minor Mitral Valve Prolapse, bilateral acetabular hip dysplasia (corrected in a procedure called Periacetabular Osteotomy--PAO), gastroparesis and delayed intestinal motility, Hashimoto's, Graves', Autoimmune Neutropenia, and Complex Regional Pain Syndrome (CRPS).
Hey Jill! The hip chicks site started charging so I found you on here. I also have a blog..just started it today actually. It's http://www.erinsgoteds.blogspot.com/ If you have any tips for me let me know. Hope all is well.
ReplyDeleteUnfortunately Krystal had to start charging...originally she was paying out of pocket monthly and she is currently unable to work because of her son's heart defect. I paid for one year membership.
ReplyDeleteOn the left hand side of my blog--towards the bottom--is an elephant button for e-mails, feel free to e-mail me with any specific questions you have and we can communicate that way.
I will definitely take a look at your blog. Welcome to blogging :)
Hope you are well. I look forward to hearing from you soon.