Thank you to those who contributed quotes and/or pictures for this video!
New EDS Awareness Video
I made a new EDS video. It is very similar to my first video, however this time I included quotes on how EDS affects different people.
Thank you to those who contributed quotes and/or pictures for this video!
Thank you to those who contributed quotes and/or pictures for this video!
My name is Jill and I am 29 years old. I am a former competitive gymnast and I have Ehlers Danlos Syndrome (hEDS), Chiari Malformation- Type 1 (8.5mm herniation), craniocervical instability, Neurocardiogenic Syncope and POTS (forms of Dysautonomia and secondary conditions to EDS), slight/minor Mitral Valve Prolapse, bilateral acetabular hip dysplasia (corrected in a procedure called Periacetabular Osteotomy--PAO), gastroparesis and delayed intestinal motility, Hashimoto's, Graves', Autoimmune Neutropenia, and Complex Regional Pain Syndrome (CRPS).
Hi Jill
ReplyDeleteMy name is Jenna and I came across your site. You are an amazing, courageous, strong and determined person and fighter. You are an inspiration and a hero. I was born with a rare lie threatening disease, and I have 14 other diagnosis.
I will be continuing to pray for you and keeping you my thoughts.
Although the world is full of suffering, it is also full of the overcoming of it.
Helen Keller
How can elephants get down from a tree? He can sit on a leaf and wait until autumn.
http://www.caringbridge.org/visit/champ291
Hi!
ReplyDeleteThanks so much for your positive feedback and words of encouragement. I am so sorry to hear about your life threatening disease. I will check out your caringbridge site! I am sending prayers your way as well..
You are so right! I live by the quote, "you can't always decide what happens to you but you can decide how you react"...with a positive attitude even the most difficult struggles seem possible!