You can also watch the video here: http://www.youtube.com/watch?v=gXsUA8yxHWs
My EDS Journey- Updated
Awhile back I made a video montage of my journey with EDS and I said that I would continue to add to it because EDS is a lifelong condition. I decided to update it today with pictures from more recent surgeries and challenges.
You can also watch the video here: http://www.youtube.com/watch?v=gXsUA8yxHWs
You can also watch the video here: http://www.youtube.com/watch?v=gXsUA8yxHWs
My name is Jill and I am 29 years old. I am a former competitive gymnast and I have Ehlers Danlos Syndrome (hEDS), Chiari Malformation- Type 1 (8.5mm herniation), craniocervical instability, Neurocardiogenic Syncope and POTS (forms of Dysautonomia and secondary conditions to EDS), slight/minor Mitral Valve Prolapse, bilateral acetabular hip dysplasia (corrected in a procedure called Periacetabular Osteotomy--PAO), gastroparesis and delayed intestinal motility, Hashimoto's, Graves', Autoimmune Neutropenia, and Complex Regional Pain Syndrome (CRPS).
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