Shopping Adventure
I woke up this morning and decided that I needed to get out of the house. I don't care how badly my hip and knee hurt I need a change of scenary and something to do. My mom and I are going shopping this afternoon and I am so excited! If I last 5 minutes it'll be an accomplishment-although I am pretty sure I can last longer than that! This trip will most likely be my "outing" for the week but it's better than lying around all day watching the referees at the FIFA World Cup make ridiculous calls. I am still very angry about the disallowed goal for the USA in yesterdays match against Slovenia. I probably screamed at the TV for 10 straight minutes! At least we know my lungs are working well!
My name is Jill and I am 29 years old. I am a former competitive gymnast and I have Ehlers Danlos Syndrome (hEDS), Chiari Malformation- Type 1 (8.5mm herniation), craniocervical instability, Neurocardiogenic Syncope and POTS (forms of Dysautonomia and secondary conditions to EDS), slight/minor Mitral Valve Prolapse, bilateral acetabular hip dysplasia (corrected in a procedure called Periacetabular Osteotomy--PAO), gastroparesis and delayed intestinal motility, Hashimoto's, Graves', Autoimmune Neutropenia, and Complex Regional Pain Syndrome (CRPS).
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