I am still waiting on the official date for my shoulder surgery and I will update when everything is finalized.
Save the Date!
My RPAO is scheduled for March 22nd at the Children's Hospital of Boston. I was definitely hoping for something earlier but I am relieved to have a date set. I have been waiting a long time-(since December). My friend Marena (a Boston Hip Chick) has her RPAO the day before at Children's as well. It'll be nice to have a friend there with me.
My name is Jill and I am 29 years old. I am a former competitive gymnast and I have Ehlers Danlos Syndrome (hEDS), Chiari Malformation- Type 1 (8.5mm herniation), craniocervical instability, Neurocardiogenic Syncope and POTS (forms of Dysautonomia and secondary conditions to EDS), slight/minor Mitral Valve Prolapse, bilateral acetabular hip dysplasia (corrected in a procedure called Periacetabular Osteotomy--PAO), gastroparesis and delayed intestinal motility, Hashimoto's, Graves', Autoimmune Neutropenia, and Complex Regional Pain Syndrome (CRPS).
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