As May comes to an end, so does Ehlers Danlos Syndrome Awareness month. But we shouldn't have to wait for 1 month every year to spread awareness. It's important to keep educating people and raising awareness.
Invisible Illness
I came across this article on Facebook and it's really well done so I wanted to share.
As May comes to an end, so does Ehlers Danlos Syndrome Awareness month. But we shouldn't have to wait for 1 month every year to spread awareness. It's important to keep educating people and raising awareness.
As May comes to an end, so does Ehlers Danlos Syndrome Awareness month. But we shouldn't have to wait for 1 month every year to spread awareness. It's important to keep educating people and raising awareness.
My name is Jill and I am 29 years old. I am a former competitive gymnast and I have Ehlers Danlos Syndrome (hEDS), Chiari Malformation- Type 1 (8.5mm herniation), craniocervical instability, Neurocardiogenic Syncope and POTS (forms of Dysautonomia and secondary conditions to EDS), slight/minor Mitral Valve Prolapse, bilateral acetabular hip dysplasia (corrected in a procedure called Periacetabular Osteotomy--PAO), gastroparesis and delayed intestinal motility, Hashimoto's, Graves', Autoimmune Neutropenia, and Complex Regional Pain Syndrome (CRPS).
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