Monday, September 27, 2010

Rascal Flatts


I had a FANTASTIC time at the Rascal Flatts concert! They seriously put on a great show! Maybe I'll even go next summer : ) Below are some pictures! Enjoy


"My wish for you is that this life becomes ALL that you want it to, your dreams stay big, your worries stay small, you never need to carry more than you can hold."


Thursday, September 23, 2010

Florida

I am leaving for Florida tomorrow to see Rascal Flatts in concert with my mom and some friends! This will be my third time seeing them in concert--they put on a great show and if your a country music fan I definitely recommend going to see them : )

Although my hip and knee (and now back) are not doing well--I am really looking forward to this trip. It'll be nice to get out and do something fun! Especially since the "getting out" part means a trip to Florida : )

Next weekend I may even get to go to the zoo! Have to fit in a few fun activities (despite the pain) before my upcoming knee surgery!

I was also discharged from therapy today. Unfortunately, I can't say that I "graduated." I was just released until after my knee surgery---I will have a lot of work to do for both my knee and left hip when I return!

Wednesday, September 22, 2010

Herniated Disc?

I had an MRI today to check for a herniated disc in my thoracic/cervical spine region. I have been seeing a cardiologist for several months for chest pain. After many tests and several echos my cardiologist is confident that my chest pain is not related to my heart. However, due to EDS I will need to have an echo performed at least every other year to check for changes. As for the chest pain, he feels I have nerve entrapment in my back (from an alignment issue) that is causing my pain, tingling sensation in my arm and fingers, and back/shoulder pain. I spoke with Dr. Shiple who agrees with his theory and prescribed an MRI to check for a herniation. I should have results by next week (maybe earlier) and will post an update.

Treatment for a herniated disc varies depending on region. Injections (steroid) are typically the first course of action. Therapy is sometimes helpful in strengthening the surrounding muscles and maintaining proper alignment and mechanics. Unfortunately I am running out of therapy sessions for this year (only 15 left). With knee surgery in 3 weeks (followed by an extensive rehab protocol) and my left hip issues (which still require a lot of therapy and strengthening) having only 15 sessions left for the year is a bit troubling. I guess we will cross that bridge when we come to it. However, it's coming up soon.

Tuesday, September 21, 2010

Sunday, September 19, 2010

Tuesday, September 14, 2010

Mick and Roo


I haven't provided any update on our two puppies lately so I thought I'd write a post. If you don't already know, we have two Miniature Australian Shepherds--Mick and Roo. Mick is a black-tri and Roo is a red merle. They are both absolutely stunning and very funny puppies. They are always up to something. The boys (or "lads" as my dad calls them) will be 8 months old on September 25th. It's hard to believe that we have only had them for 6 months. They are both extremely loving dogs and I don't know what I would do without them. They are the center of attention--all day, everyday!

Saturday, September 11, 2010

MPFL Reconstruction

I have officially set the date for my knee surgery-October 12th at Children's Hospital of Boston. Originally I had planned on waiting until December (after finals) to have the surgery. Because I am no longer taking classes this semester I see no point in waiting until December. I might as well get the surgery over with so that I can focus on recovery and actually make progress on my hip therapy. I also still need to have my right hip fixed and plan on having the PAO/scope in January or February.

I mentioned in an earlier post that I will be having an MPFL reconstruction and lateral release of my left knee. I have been experiencing frequent subluxations of my patella (sometimes while wearing the brace). I had an MRI which showed that my patella does not sit in the groove correctly and is subluxed laterally (outside of knee). I had an ultrasound which revealed a tear to the medial patellofemoral ligament (MPFL). Due to the laxity of EDS I need to have the ligament reconstructed. The surgery can be done several ways. With most patients a tendon from the hamstring is used to reconstruct. However, given EDS this is not an option for me. Using my own tendon would do absolutely nothing. Instead a cadaver tendon will be used. My surgeon also mentioned an osteotomy (Tibial Tubercle Transfer) to realign the tibial tubercle. However, my understanding is that we will hold off on the osteotomy for now. If the MPFL/lateral release procedure does not provide enough stability and I continue to have subluxations then the osteotomy will be our next option. However, during surgery if he feels I would benefit from the osteotomy (meaning there is more damage then expected) then I believe that will be performed as well. This is something I will definitely ask at my pre-op appointment as I'd like to be somewhat prepared if I wake up with a 5-6 inch scar down the middle of my knee. This surgery is an inpatient procedure and I will spend 1-2 nights in the hospital. My surgeon has also asked for another surgeon to be in on the surgery-although I am not sure why at this point.

Rehab for this surgery will depend on what procedures are performed. If the osteotomy is NOT performed then I should expect a 3-4 month recovery. I will be able to start formal therapy at 1-2 weeks post-op--and will be permitted to weight-bear as tolerated. However, if the osteotomy is performed then the recovery is 6-8 months and I will not start therapy until 6-8 weeks post-op (when the bones have healed).

We Remember

WE REMEMBER...
9-11_firemans_flag_full.jpg

It's hard to believe that the tragic events of September 11th happened 9 years ago. I am sure a lot of people remember exactly where they were and what they were doing when they received the news. For me I was in Mrs. Wosk's 6th grade class finishing our Language Arts lesson for the day. We were supposed to switch classes for Math (the only class we switched for) but we didn't. My math teacher had to leave as her husband worked in the World Trade Centers. A lot of parents came to pick their kids up early. Living in NJ at the time, a lot of parents worked in NYC, some in the World Trade Centers. I remember hearing that my recreational soccer game was cancelled but I couldn't understand why. When I arrived home from school my dad was sitting in the TV room. I walked in and sat down and stared at the news. I couldn't believe what I was seeing. Two planes were flying directly into the World Trade Centers.

Today we remember the tragic events of 9/11 and all those who lost their lives. We will never forget! God Bless America!

“And I’m proud to be an American, where at least I know I’m free. And I won’t forget the men who died,who gave that right to me.”
~Lee Greenwood

Friday, September 10, 2010

"I can't move my leg"

I haven't posted in a week. A lot has happened since last Thursday and I have a story to share. Unfortunately it's not a happy story, although most people find it amusing (at least after the fact).

Tuesday I had therapy. I was still in a lot of pain from the chair incident at school but Cam wanted to do some manual therapy. I started out icing and heating--ice for my knee and heat for my groin. Just as Cam was about to start manual therapy, Dr. Shiple came over and asked if he could do an ultrasound of my groin (he had a cancellation). The ultrasound was painful and Dr. Shiple had to move my leg around to check for any tears. Luckily, no tears. However, I have 2 calcifications in the soft tissue. Calcifications can be extremely painful and seeing as I was due to have manual therapy with Cam it was good to know where they were. He made sure to avoid those areas during the treatment. I managed to survive manual therapy without any tears (which almost never happens). I did NO formal therapy exercises which I was excited about. Instead I iced for a long time and talked to Amy and Lindsey.

Jackie (Dr. Shiple's assistant) came over with new knee braces for me to try because my brace is not supporting me well enough. When I tried to lift my knee off the table to put the brace on, I experienced knife stabbing pain in my groin. After trying several times to get the brace on (I was in tears at this point), Jackie told me to try it on later when my hip had calmed down.

I sat on the table a little longer trying to ignore the groin pain and when it finally seemed like it was calming down I went to get off the table. Bad idea! Immediately the knife stabbing pain came back and I literally could not move my leg. I called Cam who came over and told me to sit back on the table with my legs off the side. This was a less compressive position for the psoas and would hopefully ease the pain. In a couple of minutes I got off the table and started to crutch towards the front. The slightest movement in my pelvis and I experienced the stabbing pains so I made sure to crutch extremely slowly--barely moving. When I finally made it (probably 6 minutes later) I started talking to Amy and Edna to give myself a break. In mid-sentence I started to experience the knife stabbing pains in spasm form and turned around to find Cam. I don't know if it was the sound of my voice, facial expression, or lack of color in my face but Cam came right over. At this point I could barely breathe because of the pain and I felt sick to my stomach.

Cam tried to get me on the table which was close to impossible as I felt like someone was taking a saw to my hip. When I finally got to my back, Cam stood with his knee under my leg and held it in that position for 15 minutes. Any movement and I experienced stabbing pain--and at random times it would go into spasm. Eventually Cam had to return to his other 2 patients and finish their manual therapy so he stacked pillows under my leg.

After lying there for awhile I had to get up to go to the bathroom. Amy tried to help me but we failed. I still couldn't move without excruciating pain so we called Cam over. It took another 5 minutes to get me off the table and I was hysterical the entire time. When I finally got to my feet I nearly collapsed. Thankfully Cam and Amy were holding me up. I felt so sick and dizzy that there was no way I could crutch or even use them as crutches. I ended up sitting in a chair with my leg on a scooter. Amy pushed the scooter while Cam pushed the chair to the mens room (it was closer). What a site to see!

After the bathroom trip I was sitting in the chair with my leg on the scooter when I experienced another spasm. This nearly threw me off the side of the chair. Cam came back over and I told him I couldn't sit and needed to change positions. We decided that getting back on the table was the best option. Once again, it took forever just to get me onto the table. At this point the spasms were more constant and I found myself unable to control my breathing. I was so dizzy/sick/dysfunctional that you'd have thought I was taking some serious drugs. Cam spent the rest of the time (before my dad arrived) holding my leg.

My dad came to pick me up (as clearly I was not allowed to/going to drive) yet we were faced with another challenge-how to get to the car. We had tried the chair sliding method--that was way too painful and after almost falling off the chair earlier it wasn't an option. We tried the crutches but I physically couldn't move. I felt so weak that I would have collapsed (Cam and Amy were holding me up again). Finally Cam decided that he had to carry me to the car. Greg came over and they both "football carried" me out.

The car ride was terrible! I was in so much pain. When I finally got home it took forever to get me out of the car and into my room. For the rest of the night I laid in my bed with pillows stacked under my leg. I managed to take small naps in between spasms and spent the rest of the night like this. Thankfully (seriously THANK GOD) I woke up in the morning with NO spasms. Although the pain was still there when I moved my leg-at least I could control it.

The scary/frustrating part of this story is that neither Cam, Dr. Shiple, nor myself have ANY idea what or why my leg went into spasm and why I couldn't move it. We have a bunch of theories but will never know the truth. I say it's scary because I have no idea what triggered such intense pain and I NEVER want to experience that again. Words cannot even begin to describe the amount of pain I was in.

Thursday, September 2, 2010

Not Ready!

Today would have been day 4 at SJU. Unfortunately I can only say that I made it through 3 days--although barely. Last night my mom and I came to the conclusion that I should take this semester off as I am not physically ready to navigate a college campus and focus on my courses. My groin pain is unbearable and sitting is very difficult. The hour commute was too painful and I could barely pay attention in class because of the pain. My kneecap is becoming more and more unstable--it subluxated IN the brace the other day. It's upsetting because I was very excited to get back into the swing of things. I really liked my classes as well. My spanish teacher was amazing and the class was really interactive. I met a bunch of new people in that class and I was excited about meeting more people. My IHS-Chronic Illnesses course was great. The teacher was so easy-going and the topics that were going to be covered were so interesting.

Instead of taking courses for credits at SJU, I will be taking 2 online (self-paced) classes that don't count towards anything. This will give me something to focus on and I will treat them like I would a credited course. I am taking Anatomy and Physiology 101 and Medical Terminology.

I started back at work this week although it has been very very difficult. I am in so much constant pain that it's hard for me to coach. I will be working 3 days a week--only for a couple of hours and will work primarily with the level 4s (verbally) and in the office.

Unfortunately I had an incident during one of my classes that set me back again! Some kid knocked his chair into my left (bad) leg and crutch--to stop myself from falling I put the leg down hard. My kneecap subluxated in the brace and I felt as if my hip was being ripped out of the joint. I was planning on having my knee surgery in December but will try and schedule for sometime in October now that I don't have classes. If October works out I will probably have my RPAO/scope in February! I was supposed to have 3 PT sessions this week but had to cancel today as I was in too much pain and wouldn't have gotten anything done.

Tomorrow Shane has his first official HS soccer game of his senior year! I am excited that the season is starting--gives me another event to look forward to every week.