**Please remember that I am almost always dealing with more than one joint and problem at a time so some blog posts overlap and aren't completely focused on one topic. I will update this post when necessary.
Where it all began...
My Hip Story
Special Blog Posts
Stubborn Competitor
Boston, You're My Home
The Importance of Sports
PAO and Hip Related Posts-
Visual Animation of Surgery
Preparations for Surgery- Blood Donation
Hip Anatomy
Hip Pain
1st Blood Donation
Active Release Technique
Femoroacetabular Impingement (FAI)
Pre-op Appointment LPAO
Day 1 Post-LPAO
Post-Op Days 2-4
Post-Op Days 6-7 & Epidural Headaches
Post-Op Days 8-11 & Experience at Boston Children's
Helpful Tips for Hospital
Before and After X-Ray- LPAO
X-Rays @ 3 weeks post-op
X-Rays @ 3 months (12 weeks) post-op ***HEALED***
LPAO Incision Pictures
Incision @ 18 days post-op (5.5 inches)
Incision @ 1 month post-op
Post-Op Appointment 1
Continued Knee Pain Post LPAO
Tilted Kneecap
PT for left knee with diagrams of kneecap positioning
*My knee pain continued to worsen and my patella started subluxating regularly--this eventually lead to the diagnosis of EDS Type 3 and a MPFL Recontstruction
1 month post-LPAO and knee evaluation
Neuromuscular Electrical Stimulation for left knee/quad muscle
Superficial Prolotherapy- left knee
Knee or Hip?
8 week post-op appointment and EDS diagnosis
Post-op PT for left hip, Cardiologist, blood work
Recap
3 month post-op appointment
"I can't move my leg"
Iliopsoas and Adductor Longus Tear & Calcification
LPAO screws
Breakthrough in PT (relates to hip and knee therapy)
Now and Then (LPAO progress)
Date for RPAO
Pre-Op RPAO
RPAO protocol (same as left)
Post-Op Day 0-1
Post-Op Day 2-5
Post-Op Day 6-Discharge
Hospital Visits
Piriformis Syndrome
RPAO- Incision and X-Ray (before/after)
2 weeks post-op (RPAO)
3 weeks post-op (RPAO)
4 weeks post-op--with incision picture (RPAO)
5 Week Post-Op Appointment
RPAO Post-Operative PT
1 year post- LPAO
RPAO Incision 13 weeks post-op
Pop in hip after fall down the stairs
5 month post RPAO, 1 year and 2 months post LPAO (joint space narrowing?)
RPAO Screw Removal Picture (majority of post is about knee surgery)
Real World: My Hips Suck
Hip Surgery- decision
Hip Hip Hooray-December 2012 surgery (ITB release/elongation)
Post-Op Hip Update- (focus is ankle and knee)
1 Week Post-Op Hip (ITB release/elongation)
Left Hip 3 Weeks Post-Op (ITB release/elongation)
Left Hip 4 Weeks Post-Op (with knee and ankle MRI)
Hip Hop- Post-Op Updates, Summer 2013
Right Hip (Surgery...again)
EDS & Secondary Condition Related Posts
Holter Test
*I had been experiencing chest pains and pre-syncopal episodes. Because there is a possibility of heart complications in patients with Ehlers Danlos Syndrome we took all necessary measures to rule out the heart!
Elbow Pain
*I continue to experience elbow pain. This is a result of a nerve dislocating from the groove.
Costa Rica
*I was hoping to go to Costa Rica on a volunteer trip but surgery dates and slow recoveries prevented this from happening. I still hope to go on a volunteer trip one day.
Insensitivity to Local Anesthetics
End of the Year Reflection
Got Spoons? (Great story that helps explain what it's like living with an invisible illness)
So You Think You Might Have EDS? (must read article if you are looking for more EDS info)
New Bed- Sleep to Live
What's Your Blood Type?
Dysautonomia
Heating Pad Burn
Post-op EDS symptoms (syncope, SI joint/back pain)
EMG
PCP appointment about secondary conditions (dysautonomia, neurocardiogenic syncope, asthma, allergies, back pain, etc)
EDS Awareness Month
Snap, Crackle, Pop
Symptoms, symptoms and more symptoms
Cleared to WALK after over 15 months of assistance
Miserable Malalignment Syndrome
Back Pain and SI Instability -- rotated L5 vertebrae
Scoliosis?
Craziness-- knee, shoulder, back, ankle...everything
Arrhythmias and heart rate medication
Hivamat- deep oscillation treatment for my back
EDS National Foundation Presentations (from conference)
EDS Video ---(I made a video presentation to help educate people about EDS)
Back to SchoolZebra Pride- "You know you're a zebra when..."
Headaches
It's Official- Chiari 0 diagnosis
A little bit of everything
Dextrose Epidural- FAIL
Right Shoulder
Kidney Infection
Diamox for Hydrocephalus/Chiari
The Driscoll Theory
IBS Tales
Chiari Struggles + knee and ankle progress
International Chiari Association *Great website
Headaches + New EDS specialist, hip/knee/ankle update
Hip, Knee, Ankle, Shoulder Update
EDS Awareness Month 2012
Chiari and Cervical Instability Diagnosis and Plan
Pros and Cons of Surgery-Decompression & Fusion
Conflicted about Decompression and Fusion surgeries-Includes update on shoulder, hips, ankle and knees
Holding off on Decompression and Fusion
Second Opinion- Chiari and Cervical Instability
Invisible Illness Week
EDS Stages in Life
My EDS Journey
Speechless (spoke to a graduate nursing class about living with EDS)
Mental Health
Chiari Malformation Awareness Month
Life with Chiari
Dysautonomia Awareness Month
Ulna, Hips, Head, Ankle, CRPS, Shoulder, Knees- update
Ankle, Knee, and Hip -(Left hip post-op update)
Reflections and Resolutions (2013)
MRI Results- Ankle and Knee
Ankle Update
Summer of Surgeries-(R) hip, knee and ankle
EDS Awareness Month 2013
The Cure- video and song made by an EDSer
Update: Summer Surgeries 2013
Surgery Changes
Braces for EDS- Recommended braces for various joints based on experience
Last Semester- Update on both knees, right hip, and right ankle following Summer 2013 surgeries
Thumb Dislocation
Chuggin' Along into 2014- Reflections and Resolutions
New Challenges and Opportunities
SmartCrutch Review- my review of smartCrutches
My EDS Journey Updated
Right Hip, Right Knee, Right Ankle (Surgery)
EDS Awareness Month 2014
Invisible Illness- article recommendation
Ankle Nightmares (and the start of Nursing school)
Ankle Update, Cupping and Nursing School
Worsening Chiari
Decompression in December
Decompressed- update from posterior fossa decompression for Chiari
Health. Happiness. Hope- update 1 month post-op from decompression
Knee Related Posts
Knee Evaluation
Torn MPFL ligament
MPFL Reconstruction
Pre-op for knee surgery
Surgery Update- post-op day 0
Picture of leg in brace
*Due to atrophy problems following surgery I spent 8 months in the post-op brace.
Knee incision pictures
Post-op Appointment 1
4 weeks post-op
Flexion/ROM and PT Goals for Knee
Goal 1-Complete
2 month post-op appointment
Ultrasound Post-MPFL Reconstruction and Torn Patellar Tendon
More tears and popping in the knee
Breakthrough in PT (relates to hip and knee therapy)
Post-Op Brace Unlocked
Post-Op Appointment and 2nd Knee Surgery (5 months post-op)
**My surgeon performed a 2nd knee surgery during my RPAO procedure. He elongated the cadaver tendon (slightly) and removed scar tissue that was restricting motion.
Back to PT (following 2nd surgery)
3 weeks post-op
5 week post-op appointment and right knee evaluation
Miserable Malalignment Syndrome --- why this is related to my knee
Possible partial tear of cadaver graft (after a fall)
More knee surgery and new knee brace
Continued Knee pain
TTT Osteotomy and MPFL Reconstruction Surgery and Post-op Days 1-2
Post-op Days 3-4 and Discharge
Post-op Day 5 TTT Osteotomy and MPFL Reconstruction
Post-Op Update- Summer 2013 Surgery
smartCrutch Review
My EDS Journey- Updated video (2014)
Right Knee (Surgery)
Torn (L) ACL
Shoulder Related Posts (leading to an open reconstruction of the capsule and surrounding ligaments)
Subluxating Shoulder
Pain and Dislocations
Shoulder Surgery?
Posterior Labral Tear
**Along with the ultrasound, I had an MRI Arthrogram of the left shoulder
Shoulder Evaluation
**After my shoulder surgeon received the operative note from my first shoulder surgery, he decided that I would need an open reconstruction procedure.
Shoulder surgery date --May 6, 2011
Pre-Op for Shoulder Surgery
Post-Op Day 1
Recovery with One Arm
Short Post-Operative Update
Post-Op Appointment (6 weeks)
Post-Op Appointment (3 months)
Right Shoulder
Shoulder Surgery
Right Shoulder MRI
Right Shoulder Surgery- 2 weeks post-op
Back to PT- right shoulder surgery
Post-OP: 8 weeks (right shoulder)
Scapula Subluxations
Ankles (leading up to reconstructive ankle surgery with cadaver tendons)
Sprained ankle
Ankle Evaluation in Boston
Picture of Ankle brace (Level IV-maximum support)
Chrisman Snook Procedure
Ankle PT
Post-Op Update- Summer 2013 (revision)
AFO Brace
AFO Brace- Updated
Ankle Nightmares
Right Ankle (Surgery...again)
Ankle Update (Summer 2014)
Another Ankle Surgery in the future
Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy (CRPS/RSD)
The Beginning of CRPS/RSD
Video
Pain Clinic @ Children's Hospital of Boston
Update after leg surgeries--knee and hip
*There was concern that having knee and hip surgery on my CRPS leg would make the pain worse.
Update after visit with Pain Doctor
Increase of Neurontin ***I will be weaning off of Neurontin after my surgeries and will start Lyrica***
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